Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
Contact the author of the petition
This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..
Guest |
#272016-11-14 00:01Everyone needs to have a better quality of life, if there is a drug out there to help these children then they should be entitled to it |
Guest |
#282016-11-14 00:05Disgraceful this little girl can't get the meds she needs for her cf |
Guest |
#292016-11-14 01:34Why can't we do everything in our power to give anyone, especially children, the best medical help possible |
Guest |
#302016-11-14 12:55Because I have a little friend in Ireland and her name is Chloe Ryan she needs your help please xxxx |
Guest |
#32 Re: Re:2016-11-14 20:02Yes they do! They contacted us to sign this petition. (I'm her aunt) |
Guest |
#332016-11-14 20:14My daughter Molly is also one of the 18 children who should get Kalydeco. Please keep signing x |
Guest |
#352016-11-14 20:39I signed because they are children just starting their life's and it shouldn't have to be like this they should receive the drug without fighting for it |
Guest |
#362016-11-14 20:46Friends. The children are our future. We are supposed to look after them and protect them. |
Guest |
#37 Re: Re: Re:2016-11-14 20:52Great! Thank you xxx |
Guest |
#382016-11-14 20:56Just trying to help all the children whom is suffering from this terrible illness. |
Guest |
#422016-11-14 21:30Because every sick child should b given the drugs that are available to improve their quality of life if they have a long term illness |
Guest |
#432016-11-14 21:39My daughter aged 4 needs this drug to make life changing difference to her beautiful life my moos xxxx |
Guest |
#472016-11-14 22:29Because we as a country should value or kids livestream do everything we can to keep them healthy and alive |
Guest |
#492016-11-14 22:47for our buddy Eadaoin and all who have C.F. This treatment is compulsory, not a luxury. |
Guest |
#502016-11-14 22:53A child's health and quality of life can't, and should never, be measured by monetary cost |
|
PETITION OPPOSING ARROWHEAD AIRPARK IN CASS COUNTY MISSOURI
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, Ohio
Justice For Cwecwe
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Justice For Cwecwe
1171350 Created: 2025-03-27
Time period | Number of signatures |
---|---|
All time | 1171350 |
12 months | 1171305 |
TD hopefuls! What Fermoy needs
198 Created: 2024-11-12
Time period | Number of signatures |
---|---|
All time | 198 |
12 months | 198 |
A Change for Jennie Poole❤️
1861 Created: 2021-04-27
Time period | Number of signatures |
---|---|
All time | 1861 |
12 months | 203 |
For the maximum effective sentence for Gabriela Sashova and Krasimir Georgiev, and for legislative changes envisaging harsher penalties for crimes committed against animals!
203070 Created: 2025-03-14
Time period | Number of signatures |
---|---|
All time | 203070 |
12 months | 203061 |
#Justice_For_Cwecwe
91854 Created: 2025-03-29
Time period | Number of signatures |
---|---|
All time | 91854 |
12 months | 91849 |
Ionad Sláinte Príomhúil i gConamara ó dhéas
58 Created: 2024-05-12
Time period | Number of signatures |
---|---|
All time | 58 |
12 months | 58 |
New bus stop in boatstrand on local link route 367
157 Created: 2023-09-09
Time period | Number of signatures |
---|---|
All time | 157 |
12 months | 56 |
Justice For Cwecwe
33185 Created: 2025-03-28
Time period | Number of signatures |
---|---|
All time | 33185 |
12 months | 33184 |
Justice for Diana Iovanovici Șoșoacă
8884 Created: 2024-10-07
Time period | Number of signatures |
---|---|
All time | 8884 |
12 months | 8884 |
Justice For Terence Wheelock Campaign. (JFTW)
754 Created: 2020-09-19
Time period | Number of signatures |
---|---|
All time | 754 |
12 months | 20 |
Reject IEC result
36786 Created: 2024-06-04
Time period | Number of signatures |
---|---|
All time | 36786 |
12 months | 36786 |
Ban the use of fireworks
32 Created: 2024-10-22
Time period | Number of signatures |
---|---|
All time | 32 |
12 months | 32 |
Justice for Katarina and Stjepan: The Fight for Justice and Safety on Croatian Roads
23790 Created: 2024-07-16
Time period | Number of signatures |
---|---|
All time | 23790 |
12 months | 23786 |
Stand up for freedom: Stop the expulsion of political dissident Abdulrahman al-Khalidi to Saudi Arabia
1139 Created: 2024-03-04
Time period | Number of signatures |
---|---|
All time | 1139 |
12 months | 228 |
Relocate Robbie Fleming memorial bench from the people of Lisburn & Steven Gerrard to home town cemetery
1107 Created: 2024-06-17
Time period | Number of signatures |
---|---|
All time | 1107 |
12 months | 1107 |
Stop the destruction of a 3500 year old grave!
971 Created: 2025-01-19
Time period | Number of signatures |
---|---|
All time | 971 |
12 months | 971 |
Urgent! Open Letter On Humanitarian Visa for Dissident Abdulrahman al-Khalidi
1504 Created: 2024-10-25
Time period | Number of signatures |
---|---|
All time | 1504 |
12 months | 1503 |
Keep Women Safe on WorldPackers
221 Created: 2024-09-26
Time period | Number of signatures |
---|---|
All time | 221 |
12 months | 220 |
Bring back old way of ticket sales. No more online sales.
5 Created: 2024-08-31
Time period | Number of signatures |
---|---|
All time | 5 |
12 months | 5 |
5TH TULLOW SCOUTS WANT THEIR DEN BACK
542 Created: 2023-04-12
Time period | Number of signatures |
---|---|
All time | 542 |
12 months | 3 |