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Syringomyelia Awareness

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Guest#1 Mar 25, 2015, 11:24
I have Syringomyelia.
Guest#2 Mar 25, 2015, 14:56

Re:

#1: -  

 So do I

 

Guest#3 Mar 30, 2015, 01:06
Because I suffer from it!!....and we need more awareness!! Thank you!
Guest#4 Mar 30, 2015, 06:29
I have it and have been to too many doctors who don't understand it.
Guest#5 Mar 30, 2015, 13:05
Because I suffer from Syringomyelia and Chiari malformation.

It's been an extremely hard disease to diagnose, treat, and manage. Doctors need to be on board concerning diagnoses and treatment of this and related diseases.

People are dying unnecessarily, and some of the contributing factors could have been prevented.
Guest#6 Mar 31, 2015, 01:44
The reason I signed this petition is because my sister-in-law was diagnosed with Syringomyelia and I am hoping by signing there will be more awareness brought to this dreadful disease. It's horrible to watch a loved one suffer in pain every day!!
Guest#7 Apr 02, 2015, 15:20
My Mother suffers from SM.
RWoods#8 Apr 02, 2015, 15:23

I have SM, with proper funding; there could be a CURE!! Very debilitating Disease. 

Donna S#9 Apr 30, 2015, 21:44

A horseback accident caused mine. I live with pain and weakness everyday as well as a lot of other symptoms. We need awareness. We need a cure.

Guest#10 May 01, 2015, 00:34
My friend and her son are suffering from this
Guest#11 May 05, 2015, 01:55

My dog, Lucy has SM and Chiari Malformation, auto immune encephalitis and meningitis. It's been horrible since being diagnosed in December of 2014. I hope that whether you sign for more awareness for people or because you love someone affected by it, that you sign and forward- "share". Changedotorganization for the King Charles Cavalier Spaniel form

Guest#12 May 05, 2015, 23:41
The woman i love suffers from a syrinx! Any thing i can do to help with this cause I'M IN!
Guest#13 May 06, 2015, 00:27
The woman i love suffers from a syrinx, I'll do every and anything i can to help support the cause!
Guest#14 Jan 27, 2016, 12:29
I have syringomyelia and trying to get people to understand what is wrong is so frustrating. Have been told by my neurological surgeon and three doctors that I will never be able to work again. Please sign the petition
Guest#15 Apr 11, 2016, 06:44
I signed because I was recently diagnosed with this awful disease. I have had a hell of a time getting help dealing with the various issues including severe pain.